My cancer experience and three weird things about it

My experience with cancer had three weird things about it

My cancer experience had several weird things about it.

  • There were a couple of people really uninformed. They stayed too close to me they might get cancer as well.
  • I once heard somebody say behind my back “Hey man, look! He didn’t die yet!”
  • No one around me has pronounced the word cancer until I was more than halfway done with the treatment.

I will let the short video below to emphasize these three things from my cancer experience:

(the footage below is a rough cut from another video and at some point, I also briefly mentioned the book I am writing.)

How much more am I supposed to handle? – Erik Sturesson

how much more is enough?

I had the chance to meet Erik Sturesson (a fellow cancer patient) at the Youth Cancer Europe meeting in Vilnius, Lithuania. He was diagnosed at 15 and like many of us he had been on a rollercoaster ever since. Erik says on his website that he is often dealing with depression. Actually, it was because of it, he started writing his own blog. I didn’t have the chance to interact with him much in Vilnius but I told myself I will check out his blog once I got back to Denmark – and I did. I got to know his story a little better after reading through but haven’t been in touch since. However, I wrote to him on facebook letting him now I was about to create a blog post about him and he was totally cool about it.

The young Swede is true a fighter. While I do insist on checking out his website, I wanted you guys to read this paragraph written by Erik about a week ago.

Mum has cancer – againBefore moving on, I realise mum getting cancer isn’t primarily about me, but it affects me a lot nevertheless. (Me and my mum both got cancer within three months of each other in 2003.)

She’s helped me a lot during the years, chasing doctors, help with picking up medications, and so on. I wouldn’t be alive without her. Now however, not only will I have to watch my mother suffer from the treatment, but I will have to do that thinking that this burden suddenly fell on me, instead of focusing on my mother. There’s quite a conflict of emotions here. It’s making me feel like an ass.

And in the end as a lesson of the day for the readers I leave you with the following quote:

“When I hear somebody say – Life is hard! – I ask: Compared to what? – Sydney Harris

 

Youth Cancer Europe is a great idea and project

cancer survivors all over europe

Youth Cancer Europe is what cancer survivors and patients in Europe needed. I strongly advise you to check out their story.

The idea was born with Sarunas Narbutas, the president of the Lithuanian cancer society, a cancer survivor, and Shajjad and Katie Rizvi, founders of Little People, an award winning, Eastern European cancer charity. Together they created the Youth Cancer Europe foundation that incorporates youth cancer networks across Europe.

You can find out more by following their website. They have several projects ongoing and I haven’t seen such an organisation in Europe so far. Youth Cancer Europe is also formed out of cancer survivors from all over the continent that help realize various goals.

I had the privilige to become an ambassador of this european organisation. I have attended for the first time their international meeting in Vilnius, Lithuania – August 2017.

Bellow you can see a short interview I gave for YCE. You can hear me talking about cancer communication guidelines and my experience with it.